The Affordable Care Act (ACA) made significant progress in expanding access to health care for individuals with intellectual and/or developmental disabilities (I/DD). Access to consistent and reliable healthcare is imperative for individuals with I/DD, and the ACA created much-needed reforms to health insurance, addressed systemic discrimination, and expanded coverage.
Because of the ACA:
Health insurers can't deny you health insurance if you have a disability or chronic condition;
There aren't arbitrary financial limits to how much health care you can get in a year or in your lifetime;
Twenty million adults and children now have health insurance, thanks to the Medicaid Expansion and the health insurance subsidies; and
More people with disabilities receive supports and live in the community, not institutions.
Did you or a loved one benefit from the ACA? Then share your ACA story!
To keep in mind while sharing your story:
Did the ACA help you get health insurance for the first time, or expand your health insurance in some way?
What has changed in your daily life thanks to the expanded health coverage in the ACA?
What would you lose if your health insurance was cut, or made more expensive? Be specific on how the loss of the protections in the law would impact your health, independence, ability to live and work in your community, and more.
The Arc is collecting these stories to personalize the ACA fight. Even if the ACA is repealed in the coming weeks, it will need to be replaced with something that has to work for people with I/DD. It is critical that the I/DD community is a part of any discussion about repeal and replace to ensure that any changes meet the needs of people with disabilities.
Your story will be reviewed by The Arc's staff, and we may reach out to you with follow up questions. We are getting requests from Members of Congress and the media for stories from people with I/DD and their families, and we will follow up with you for permission before sharing your story.
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